{"id":52,"date":"2021-05-18T03:13:41","date_gmt":"2021-05-18T03:13:41","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=52"},"modified":"2021-08-24T02:55:28","modified_gmt":"2021-08-24T02:55:28","slug":"what-is-livingwitheagle-org-community","status":"publish","type":"page","link":"https:\/\/livingwithvwd.org\/?page_id=52","title":{"rendered":"What is LivingwithVWD.org Community?"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\">What is Living with VWD Support Network?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Living with VWD is a dedicated patient-to-patient support community for families affected by VWD. VWD is powered by <a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org,<\/a> patient support communities for rare diseases, and is run by volunteer moderators who have been affected with VWD.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Who can join Living with VWD?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">If your family has been affected by VWD, consider Living with VWD Support Network your second home. Living with VWD Support Network, as well as the rest of <a href=\"http:\/\/bensfriends.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a>\u2019s patient communities, is free for members to join.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">What is VWD?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Von Willebrand\u2019s Disease is a common hereditary coagulation abnormality caused by a qualitative or quantitative deficiency of von Willebrand factor (vWF). Von Willebrand factor (vWF) is a protein that is essential for platelet adhesion.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">There are three forms of VWD: inherited, acquired and pseudo or platelet type. There are three types of inherited VWD: Type I, Type II and Type III. Platelet type VWD is also an inherited condition.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">VWD Type I is more common than Types II and III, and those that have it are typically asymptomatic or may experience mild symptoms such as nosebleeds, although there may be severe symptoms in some cases.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">What is <a href=\"http:\/\/bensfriends.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a>?<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">In 2007, Ben Mu\u00f1oz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community <a href=\"http:\/\/AVMSurvivors.org\" target=\"_blank\" rel=\"noreferrer noopener\">AVMSurvivors.org<\/a> to connect with others like him. <a href=\"http:\/\/AVMSurvivors.org\" target=\"_blank\" rel=\"noreferrer noopener\">AVMSurvivors.org<\/a> led to the founding of <a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a>, driven to provide patient-to-patient support communities for people living with rare diseases.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org <\/a> is a network of patient communities for people living with rare diseases. Launched in November 2007, <a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a> provides valuable patient support by creating and running compassionate, responsive communities. <a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a> maintains dozens of patient communities and has changed thousands of lives.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">You can learn more about <a href=\"http:\/\/BensFriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">BensFriends.org<\/a> at <a href=\"http:\/\/www.bensfriends.org\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.bensfriends.org<\/a> or watch one of our videos at <a href=\"http:\/\/www.youtube.com\/BensFriendsVideos\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.youtube.com\/BensFriendsVideos<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>What is Living with VWD Support Network? Living with VWD is a dedicated patient-to-patient support community for families affected by VWD. VWD is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with VWD. Who can join Living with VWD? If your family has been [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-52","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>What is LivingwithVWD.org Community? - Living with Von Willebrand&#039;s Disease Patients Support Community<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"What is LivingwithVWD.org Community? - Living with Von Willebrand&#039;s Disease Patients Support Community\" \/>\n<meta property=\"og:description\" content=\"What is Living with VWD Support Network? Living with VWD is a dedicated patient-to-patient support community for families affected by VWD. VWD is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with VWD. Who can join Living with VWD? 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